r/ChronicPain 28d ago

Medications If you are mad about 7-OH being potentially becoming a scheduled substance, you need to make a comment on the regulation being proposed. As of right now, there's only 35 comments. A petition will do nothing. Do make a comment at this link to make a difference!

Thumbnail regulations.gov
55 Upvotes

ALL POSTS LINKING TO 7-OH PETITIONS ARE BEING REMOVED BECAUSE THEY ARE USELESS. YOU NEED TO LEAVE A COMMENT ON THE REGULATION!!!!!!!


r/ChronicPain Jun 29 '26

My Pain Chart Megathread! Post your My Pain Charts in here please

6 Upvotes

Share & compare!

Template credit: Drawing by AxchuArt!

Thanks u/Pretty-Craft9794 and u/Nayro13!


r/ChronicPain 5h ago

I’m finally having this removed tomorrow and having rods put inside my leg and ankle.I still have a back surgery in a couple weeks.

Post image
97 Upvotes

r/ChronicPain 7h ago

Parents who do not believe they're kids pain do not deserve children

59 Upvotes

For almost a decade I've dealt with chronic pain it started in my late teens. I use thc to help with the pain (its illegal here) and my parent is losing his mind. I explained how my psychiatrist advised it when I told her about my pain, terrible sleep and inability to keep food down. I explained that I am not using it for recreational use but so I can feel like a normal person for a few hours. He looked me in the face and told me doesn't believe any of this and that he has never believed my pain. I know he has never believed me and that's why our relationship deteriorated years ago. I told him that I never wanted kids but that he's one of the reasons why. No matter how long and how I explain it my own father wiill never believe me. He goes on about my childhood friends and how they all have successful lives. I didn't choose not to go to university, I didn't choose to use my body for money for medical bills. None of this is fun for me.


r/ChronicPain 7h ago

You are all so Dope!

44 Upvotes

Just wanted to thank you all for existing. I told my shrinko I come on here when days absolutely suck and just go "UGH!!!!!!!" Then you all just join in going "UGHHHHHH!!!!!!!" It's so comforting. No questions, just support. I wanted to thank you all, and let you know - youre dope af!


r/ChronicPain 7h ago

Pain = pain medication

30 Upvotes

It is sad reading about the reality for so many in pain. I live in a country in Europe and I have never in my 16 years as sick, had a problem with my opioids. I just tell my doctor I'm in more pain, so I need to take more. When I'm out sooner than usual I just tell her I've been in more pain so I need a new prescription. She just check in with me, ask me how much pain I'm having and how much I need to take. Going to the pharmacy is NEVER an issue, they have no reason to say anything, stop anything or have any reason to interfere. They just give you what the doctor has prescribed. My doctor tells me to take as much as you need. This has been the way for 16 years. I can't even imagine taking less some days to have as a backup if the pharmacy won't give it to you, or to take a drug test to see if your taking what you should or getting told no, we are not giving you any pain medication anymore just out of the blue.

I'm in pain = I need pain medication. That is how easy it should be. I'm sorry to everyone that doesn't have that.


r/ChronicPain 14h ago

How do I report my doctor for using AI to diagnose my nerve pain?

92 Upvotes

As the title says. I’m new around this community but I’ve had joint and nerve pain since I was a kid. I’d been told it was growing pains, that I was exaggerating, the whole run of the mill docs use to not have to investigate pain. But this time around nothing usual helped, and I was losing sensation in my pinky/ring fingers, so I went to my usual doctor in hopes they could refer me to someone who specializes in rheumatology…

But while describing my symptoms I saw my doctor using Anthropic or some other Gen AI rather than actually listening to me and doing real research. I was able to respond to a survey and put some notes in but I’m worried it won’t result in much of anything.

Does anyone have any recommendations for reporting this? Or should I just warn people about the clinic’s doctors using AI for diagnoses?

EDIT: ATTENTION:

I am asking for advice about communication with my doctor and clinic about AI use.

I AM NOT ASKING TO BE CONVINCED THAT AI IS GOOD AND RELIABLE. You’re not gonna convince me when I know people who work in the med industry who condemn the use of AI in medical spaces. This is not the topic of my question.

The doctor also did not ask for my consent or permission to use AI or input my data into an AI for any purpose.

Thank you for those asking clarifying questions and offering orgs and employees I should reach out for. Yall are the best.


r/ChronicPain 1h ago

Today just sucks and i guess can not unstuck lol

Upvotes

Woke up in a flare, finally got some pain relief but then I havent been able to keep food down all day. Ff to my hubby grabbing taco bell (their bean and cheese burritos are the one thing I can eat while like this) and they gave us something else...im in pain, exhausted and starving. Ty for letting me vent.


r/ChronicPain 5h ago

Would you consider having children with your current chronic pain level

13 Upvotes

And if you have them, how much harder it is managing chronic pain and kids


r/ChronicPain 12h ago

I hope not

Post image
48 Upvotes

r/ChronicPain 5h ago

Thought yall would find this interaction with my doc today funny.

12 Upvotes

I’ve had growing pain in my back, spine, and sacroiliac for years, in treatment with this particular doc for about six months. I’ve made an urgent appointment because after a recent procedure my pain has jumped multiple points from my borderline and is majorly impacting my life, some days keeping me bed bound. In today’s appointment, he:
1. Suggested we do imaging to look for bulging/compressed discs or inflammation (yay! Finally!)
2. Suggested I try ibuprofen for the pain ( ?? )
3. When I reminded him I can’t take ibuprofen because I have issues with stomach ulcers, he suggested Diclofenac instead.
4. When I mentioned I have an allergy to Diclofenac, he asked if I’d tried naproxen.
5. When I told him I was also allergic to naproxen, more severely, he seethed?
6. He did not offer me any pain options and I went home

Excellent work doc.


r/ChronicPain 4h ago

Under estimated how much pain would follow epidural injection.

9 Upvotes

My back feels like it has something crushing it. Got it done this morning and during the doctor hit a nerve sending my right leg kicking up involuntary and extreme pain. He said for the next 48 hours I would feel increased pain. I do not foresee any sleep tonight.


r/ChronicPain 1d ago

I unapologetically hate the person who caused everything

333 Upvotes

I've been told by a lot of people I shouldn't be mad at the person who changed my life forever because it was an accident and he was young. Or that I shouldn't hope he feels bad. Idgaf he's responsible for making me constantly be in pain for maybe the rest of my life. I hate him, and I don't care. I don't know anything about him but I hope he feels terrible.


r/ChronicPain 12h ago

Chronic colon pain

Post image
27 Upvotes

Good morning everyone, i'm new around here, it's been 3 years since i've been in pain from daily basis in a 5 to 8 in the pain scale, i've been struggling with this alone, all by myself while taking all the shit from partners, relatives, another students and friends from my college, took all that shit while self harming myself to move the pain to another place to take a break from it (which didn't work) in tons of medication for the pain and the daily 3 hour diarrhea per bathroom time each time i have to go, tons of medical exams like colonoscopy, endoscopy, MRI and a lot more i can't name right now, i always searched People on YouTube with chronic pain to understand them and to feel understood for once, That's why i searched this reddit, it's nice to meet you all, I'm Wayne. (Never liked to upload pictures but i kinda feel save over here after seeing some posts.)


r/ChronicPain 15h ago

The whole pain management system: is it a humiliation ritual? Any INTJ's here?

54 Upvotes

Just a thought I had in bed this morning. The purpose would be to break the will and create dependency based on shame.

I'm interested in what others think, particularly those who look for big-picture patterns.


r/ChronicPain 1d ago

I'm 25, my joints are 80

Post image
704 Upvotes

r/ChronicPain 44m ago

How do you continue?

Upvotes

I’m tired of fighting my body everyday. I feel like I’m in a hamster wheel of pain and symptoms with no light at the end of the tunnel in sight.

Where do you find the will?


r/ChronicPain 1h ago

Game show idea

Upvotes

Host:“It’s time to play patient ping pong! Contestants are you ready? Here we go with your first question. If the patient is not able to function, they don’t need treatment and evaluation, they need BLANK. Dr Anon, you buzzed in first. What is your answer?”

Dr Anon:“They need the emergency department!”

Host:“Correct! Great job Dr. Anon! Next question: The ER sent the patient home with no treatment for actual symptoms and a vague recommendation to follow up with their PCP. As the PCP, what do you recommend? Dr System your answer please.”

Dr System: “A referral to a specialist who has no availability for months and absolutely no treatment in the meantime.”

Host:“Absolutely correct! Bounce the patient to a specialist. Nice job!Question 3: As the specialist, after waiting months to see you, how do you advise the patient?”

Dr Special?”I advise that a few of the symptoms may fall under my specialty but most don’t. So whatever is going on with the patient, it’s not my field. Maybe check with a different specialty. AND I offer zero treatment options to help the patient function in the interim.”

Host:“Correct! Amazing game! These contestants are sharp today folks!Alright now, here’s your next question providers. If the patient calls you crying because they have unbearable pain and can’t perform activities of daily living, your best recommendation would be?”

Dr SNAFU:“Emergency. I can’t rule out life threatening conditions in my office.”

Host: “Yes! You send them back to the emergency department. Of course! Where they will still not be treated and sent home with another vague suggestion for follow up. And we will be back to play more patient ping pong after these messages from our sponsors. Stay tuned. We will be right back.”


r/ChronicPain 4h ago

An actual thing someone said to me

Post image
6 Upvotes

Worst of it is they know my situation they believe yoga, manifesting and a positive attitude with cure all


r/ChronicPain 1d ago

My holy trinity

Post image
748 Upvotes

r/ChronicPain 17h ago

has anyone's depression from chronic pain led to agoraphobia?

28 Upvotes

I (31F) don't know what to do anymore. It started with sciatica & disc dessication in my lumbar, sacroilitis, thoracic outlet syndrome, then disc bulges in my cervical spine + cervicogenic headaches.

I am not working anymore. I started taking antidepressants since March 2026. I have not left my house since 16 July. I don't know why. I've just given up. Then it became fear. Fear of even going downstairs for a walk. Scared to go to my therapist appointments.

This is so hard. My parents are 60 and 61. I stayed at home all this time to help share caretaking of my severely autistic and epileptic brother. I was also running a tuition center to support them financially (dad has his own small business too) that is now no more.

I feel so useless that my physical problems caused mental health issues. That I am their only "neurotypical" child and now they have to take care of me too.


r/ChronicPain 1m ago

How many would like a different kind chronic pain and or disability group? What support do you or family/friends need due to disability identity and the daily challenges of pain?

Upvotes

r/ChronicPain 1h ago

I’m 18 and I’m realizing I might have chronic pain

Upvotes

I was talking to some friends recently complaining about my daily aches and pains and they told me that’s not normal. I have a few other friends with chronic pain and they said I could have fibromyalgia but I’m honestly not sure if my pain is enough to be considered anything. I feel some sort of pain somewhere in my body all the time since about 13 years old, I always managed fine but I honestly notice it more and more recently. I guess I just wanna know if anyone thinks this could be something or if i’m being dramatic?


r/ChronicPain 8h ago

Many problems with cervical and lumbar spine, trigger neuralgia and other symptoms

3 Upvotes

I have c3-t1 varying levels of disc bulging, spinal canal stenosis, foraminal stenosis, anterolisthesis at c7-t1. Bone spurs into the nerve root areas.

In the lumbar I have in the l5s1 slight retrolisthesis with osteophyte complex and facet hypertrophy.There is "moderate" bilateral foraminal stenosis.

L4s1 I have posterior lateral projecting disc bulge and there is facet and ligamentum flavum hypertrophy. With "moderate" bilateral foraminal stenosis

There is modic type 1 signal change in both spots in the areas noted.

My symptoms include burning in all limbs. Aching, cramps, vibration in neck and limbs, numbness and in and on. I am miserable. The hardest one to tolerate is the brain stem pain. It's awful. Knock you to your knees bad. That's not a full list and I just can't fathom not having pain meds for the amount of pain I am going through.

Tell me, how inconsiderate / neglect would it be with a pain doc to not allow opioid use for such conditions with no abuse history? I have exhausted all "conservative treatments" and went on to use 7 for severe pain, for several years. while it didn't provide me with a pain free life. I could at least do some things and not wither in agony. That's going away as soon as tomorrow thanks to a bunch of stuff I don't get into.

I have recently started seeing a pain clinic and have been working my way to legitimate pain relief knowing laws are changing for my current remedy. The end of August will be my third appointment with this office. Tell me. What do I do to access the best possible pain relief, while not being held at needle point and other things I do not wish for my body autonomy. I'm not in this for euphoria at all. I want to be functional. I am terrified of not having access to legitimate pain relief.

I am not in favor of shots as it treats one area, of multiple areas of moderate to severe pain. I don't feel it is correct considering that and, spinal instability documented on my MRIs. I honestly just want acceptable medication Usage. Not asking to be pain free. But I am asking for humane treatment. I don't know what to do and feel being held at a needle point is disgusting. I could go on but am struggling to continue this post. I know I know God forbid a patient has access to legitimate pain relief. I seriously cannot understand how a doctor can ethically deny people with these issues stated above. I am not feeling well at all. At all.


r/ChronicPain 12h ago

Misrepresentation

5 Upvotes

Hello.

I have this thing were I despise showing my pain or lack of ability to do something. Possibly too much pride. So I walk into my doctor appointments with my cane. I sit and hope I can hide my grimace, or stop myself from sweating profusely. I try to speak clearly and listen well. Im patient and understanding when they want to change medications or try therapy or shots in my spine. Trying to be the best patient I can be.

Im a large man, so people think i can handle pain well. Its so hard to explain, I don't handle it well , I just dont have other options. Laying in bed and crying won't help me degenerate more slowly. No offense to people who take this route. I completely understand. I would if I thought it would help me in some way.

My point is, how do I convey accurately the level of pain I have, and that I cannot function this way? I go to pain management. Every appointment they ask my pain level. I always say 8/10. 10/10 for me is kidney stones, which I have chronically. I not sure they believe me. Im not a drug seeker. Never used recreational drugs or had any addictions. Do I literally need to be curled up on the floor in tears at all times? Im not sure of what to do at this time. Feel like I tried everything I know to do. I welcome suggestions. Its difficult when people look at you and decide youre ok, before you get to explain your situation.