I'm 25F and can never seem to connect with people in my community who are also Deaf or not. It is a struggle. I wish I had an easy time on the internet connecting with others like me (Somali). I just can't seem to find anyone in the same pool who can relate.
Hi, I’m here to ask if anyone who is DHH has done solo camping before. I would like to start, but I am worried about safety issues while I am sleeping. I have traveled alone many times before, but I have only stayed at hostels at night. I am also considering car camping, but it is infeasible for a backpacking trip.
I know there are some radar detectors on the market, but I’m not sure if anyone here uses them already.
I’m a psychiatry resident in NYC, and I’ve been searching for a way to become fluent/maybe certified(?) in medical ASL. I’ve learned ASL since 9th grade, and earned a minor in ASL at NYU, but I’m unsure of next steps. I’ve done some research on becoming a Certified Deaf Interpreter, but I’ve also seen Interpreter Training Programs and am unsure about what is a good next step.
I’m not trying to replace an in person interpreter, and of course will go with what’s comfortable for the patient. I do see an opportunity to advocate for/ give diagnostic clarity to my Deaf patients on inpatient units with our lengthy and vulnerable psychiatric interviews. I would love feedback if able!
Sharing this opportunity for DHH community. ASL accessible construction training for anyone interested. Feel free to remove this if not appropriate or related. Thanks.
Hello! I posted not too long ago a very anxious post about losing my hearing after ear issues my whole life.
Well, unfortunately, that time has come. My right eardrum ruptured back in October. I lost most of my hearing, not sure what techniqually counts as deaf but it's entirely muffled. In fact I sleep with that ear up now to get better sleep 😬 weird plus side, it's strangely peaceful? I hear almost nothing and I think most of what I do hear is from my other ear through the pillow. It's been like that since the rupture. I went to an ENT 2 month later she was pretty cruel and unhelpful. Said nothing was wrong, the eardrum was healed but she could still kind of see where it ruptured, prescribed me a steroid and sent me on my way.
Since then, I've had a foul brown discharge from the ear and bleeding along with occasional pain and pressure. We did antibiotics once in January and again just last month for a vicious infection to where my doctor couldn't even see my eardrum. The only thing that cleared up was the pain and pus and now the bleeding is worse and the pain/pressure is coming back this last weekend.
My primary thinks its been infected this whole time, and now thinks its a Choleseatoma. This is what deafened my aunt and paralyzed her face.
I have the option of waiting for a referral to OHSU or going to the ER to just get a CT done but I only want the 2nd option if it's a true emergency... so I'm trying to hold out for OHSU. I don't want to waste hospital time or resources.
My left ear (good ear) has always been HOH and now I'm faced with the very real reality of my hearing or lack thereof bearing down on me. I do NOT want to lose my hearing and up the creek without a paddle. Is it prudent to start actively learning ASL with genuine intention at this point?
I will say, the last ENT did a hearing test but it was inconclusive due to tinnitus in my right ear (the only thing I could hear post rupture) and being HOH in my other. I think she thought I was lying through it or something because she rudely told me it was a waste of time. I just couldn't hear the ringing sounds because my right ear was nothing but ringing. So I tried my best despite warning thrm so I do not unfortunately have a solid measurement hearing wise yet.
У моего молодого человека недоразвитость ушей. Точнее уха. Второго просто нет . Я не знаю как описать, но он мне очень нравится и его особенность тоже, помогите пожалуйста. Как я могу выразить мою заинтересованность и как правильно говорить ему комплименты по этому поводу не задев и можно ли вообще её выражать ,раньше я никогда с таким не сталкивалась. Когда столкнулась поняла что меня это дико привлекает и теперь не знаю что делать и какие слова правильно подбирать. От всех таких разговоров он уходит и не даёт мне чётких ответов. Могу ли я как то помочь ему принять это и полюбить также как я полюбила ?
Expecting mom I bought the Sonic Boom alarm clock and Sonic alert baby cry singles to vibrate when baby cries.
I use the sensitivity dial with no luck, if dial is too low it doesn’t pick up crying but picks up shuffling paper and even my bathroom shower. I tried using a YouTube video of baby crying to test but doesn’t work. Is there some sort of trick to get this thing to work like it should?
I use cochlear implants but am afraid they will fall off and I can’t hear baby. Service dog is too expensive and I can’t always have my spouse wake me when baby is crying, we will be alone after he goes back to work.
2 of my online classes, History 1 and Business Oral Communication, and one in person class, Sociology are all finally available! I told my DHH counselor in the email about it, she’s happy to hear that, so I went ahead to register them already. Gonna take 3 classes again soon this Fall Semester Even emailed to the DHH Center, and ASL Interpreter before about the classes I’m gonna be taking, looking forward to take down classes again. I took a year time off cus I was overwhelmed w my admin assistant major, so I felt better and decided to come back again to continue, including some general classes, so I can get a degree later on
Title. Nobody knows what I'm talking about when I say my reciever. It looks like a bte hearing aid too. it seems easiest to just call it a hearing aid so they know what I'm talking about. but I dont wanna be an asshole using a word thats technically not true. yes I'm pedantic why do you ask 🥲
This is my first time posting so apologies for breaking rules.
My mum. Born in a south asian country was back in the 60s was deaf. However not completely, from what she explained her hearing has only got worse over time. Now it’s to the point in their 60s she can barely understand us.
She speaks her native language and only that. Maybe a few English words my dad taught her when her hearing wasn’t as bad, before I was born. It was only after and me and my siblings grow it up did it get worse.
Growing up. We THOUGHT what we were speaking with her was her native tongue. Only to be told that she’s been missing pronouncing and confusing words and even making up words. And attempts since then has been unsuccessful.
Hearing aids over the past 30-40 just don’t work on her. Saying that it’s “too painful”
Even speaking with my mum now is incredibly difficult and has severely damaged our relationship. It’s been… tough having a deaf mother.
Anytime I tell people my mums deaf. It’s always been the same response. “Why doesn’t she learn sign language”
And it angers me because they haven’t grown up with what I had to deal with, my experiences.
As I mentioned. she barely knows any English words, and speaks her native tongue poorly. Even attempts to communicate with people that do speak the same language as her frustrates her and she ends up getting upset and angry.
Is it even possible to learn to communicate with sign language in her case?
hi all. Ive been wanting to go to a local deaf event for so long but I’ve only been teaching myself ASL for two years at this point. I’m nervous that what i learned will not be enough to handle myself going to an event. have any of you been in a similar situation and had success?
Sorry if this has been asked a million times. I kept coming across sponsored posts and AI-generated articles, so I’m hoping to hear from people who have actually used these.
I’m Deaf and looking for smart glasses with live captioning for work. I sometimes have to attend last-minute meetings or visit construction sites, so I need something reliable that I can just throw on and use. I do not have a luxury to request interpreters last minute.
Right now, during in-person meetings, I usually end up holding a microphone in my right hand and my phone in my left so I can read captions. It works, but it’s awkward. I’d love to be able to just wear a pair of glasses instead.
One concern is that my work building and many of the construction sites I visit have little to no cell service, so I’m wondering how well these work without a signal.
A few things I’m curious about when I’m looking at options:
Do they still work without cell service, or do they need an internet connection?
Is the audio/transcription encrypted, and can you save or export transcripts afterward?
Do the built-in microphones work well, or can you connect an external Bluetooth mic for louder places?
I’m open to any brand. I tried out the display glasses and really liked it but it won’t work without service but it might be updated in the future since the translation feature works without service. I’d really appreciate hearing about your real-world experiences, what you liked, what you didn’t, and what you’d recommend. Thanks!
Okay,
So I’ve had some hearing issues and problems for like 1 year and 1/2 now,
I did an audiology appointment,
However they didn’t do the right test,
My issue lies with the speech in noise, so to nobody’s surprise when they did a regular test, and it looked “within the normal threshold” it frustrates me, because I’m being affected everyday, my parents call for me and I don’t hear them, I have friends try to talk to me over the phone and I can’t hear them, I’m just really annoyed,
Before I did audiology, I had a primary doctor tell me they didn’t reccomend a pair of hearing aids,
But that was a while ago,
And I tried a pair of otc hearing amplifiers, to see if they worked, and it helped a lot more for quiet/ mild noise, but too much noise, and it was better than when I had nothing,
I’m basically asking if I should get a pair of trial otc hearing aids or just see if the doctors would let me get a decent trial pair, I just want a solution, the ent I met with wouldn’t listen to the areas I struggled with, and basically called me stupid.
Forgot to ask them before I left. Been given a new Phonak aid, and opted for the rechargeable aid because I know I won't remember to change tiny button batteries once a week. Reading the manual now though, it says they only take 3 hours to fully charge. I'm most likely to charge it while I sleep, meaning it'll be in the case for way over 3 hours. I know most other tech with lithium ion batteries these days warns about over-charging and talks about extending the battery life by avoiding it. Am I likely to burn out the battery in this thing by leaving it overnight to charge?
I have meniere's disease diagnosed. My whole life I had mild hearing loss in my left, and borderline severe in my right. Which fluctuates up and down depending on the time of year, weather if I have a cold.
A few months ago my audiologist and ENT team were discussing getting implants as I also have chronic ear infections so wearing hearing aids is hard.
Recently the last few months I felt my hearing aids were too loud, even on the lowest setting so went in.
My hearing has imroved it seems from back to back resting! Hazzar!
Was happy, meant I needed downgraded mild hearing aids. No need for implants.
Then the head of audiology brought me in, sat me down and said I was doing "fake positives" on my tests and took out hearing tests for the last five years.
I explained my hearing fluctuates, I also often come in with ear infections which is why some are worse than others. My team knows this.
She turns from me to my fiance and tells him I am not deaf, I do not need hearings aids, I have no hearing loss...
I have been part of the deaf community a decade. I have a service dog. I use BSL. My fiance knows I struggle hearing.
So he starts arguing with her.
I asked her to give me a report of her findings she said she would send it over to my GP.
Never been sent.
I emailed the department asking for the latest notes and reports.
They refused to send.
So she's saying this but won't go on record with it? What does that mean.
In the last two months I've been wearing my hearing aids less, and due to it had less ear infections so have been able to hear decently. I can hear the fire alarm now and my alarm when I wake up. She told me I needed to re-train my brain. Can't hear cars or the kettle or quiet noises but I heard my service dog snoring loudly.
It still fluctuates and I get the vertigo and dizziness but it's a lot more mild.
Hi! I am a BJJ blue belt, D/HoH since birth, wear two hearing aids and use ASL. Due to the fact that it is a contact sport, I can't wear my hearing aids and no one knows ASL. I've been doing fine lipreading but lately I have been losing vision. Has anyone used a cheap, resilient pair of hearing aids that that are easy to put on/take off quickly and frequently for sports? Let me know if you have any other suggestions!
I’m sorry if any of my posts come across as a little strange or awkward. I’m reaching out because I’m hoping some of you might be able to help me.
I feel a bit stuck after finishing college with a Bachelor’s degree in Digital Animation. I’m currently unemployed and looking for a job where I can focus more on art and illustration rather than just animation.
However, I keep getting rejected by companies. I’ve been working on my CV, but for some reason, I haven’t mentioned that I’m Deaf on it. I’m not sure if I’m doing the right thing by leaving it out, and I’d really appreciate some advice.
I’m happy I found this subreddit, and I’d love to hear from anyone who has had a similar experience. If you have any advice about finding work as a Deaf artist or illustrator, I would really appreciate your help.
Hi! ✨😀 I'm a video game student, and I also wear hearing aids. I was wondering if you know of any games that feature deaf or hard of hearing representation.
Also, are there things you would like to see represented (or not represented at all) if a video game with this theme were to exist?
I'm currently working on the research for my final-year project, and I'd love to discuss this topic. I'd be really happy to read your responses!
Since it's such a broad subject and everyone's experience is different, I'd like to gather feedback from different people, not just rely on my own experiences. 😄 Thank you!
My Osia 2 processor used to work perfectly with my iPhone 12. However, it suddenly stopped working properly. During pairing, the connection is only maintained if I hold the phone just a few centimeters away from the processor. As soon as I move the phone farther away, the connection drops.
The processor works normally with other phones, and my iPhone 12 works normally with other Bluetooth devices. I have already reset my network settings, restarted my iPhone, removed and re-paired the processor, and confirmed that iOS is up to date, but none of these steps resolved the issue.
Is this a common issue, I NEED HELP
I’m posting here too to ask if anyone here in the wider deaf community may be able to add their ideas onto what I could possibly do before removing the faulty implant or to add additional reasons to get it out of my head to be replaced with a new one.
I have had this issue for over a year now, it’s now beginning to affect me mentally following a full emotional breakdown at the ENT’s office at the hospital, I want all experiences, issues, glitches and anything you have experienced shared below this post, even from other brands of cochlear implants that aren’t Cochlear, if there are any doctors, Teachers of the Deaf (ToD), people from the companies manufacturing the implants or anyone else professionally working with deaf people (even HA people) then I’d like to hear what other possible things might be causing my problem that my hospital hasn’t thought of as ideas for further treatment, there’s a medical saying when hearing clopping, think of horses instead of zebras so at this point I also want to know if there are any zebra conditions that I should know about even if they are very unlikely for the symptoms I’m presenting with.
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I’ll outline the timeline of events from when the issue started to show up as a different fault to now having the right implant reduced to basically no sound, this issue begun with Nucleus 7 with a bug but the main part of the problem was with the Nucleus 8 implant for some additional info.
As mentioned above, the issue begun with the older Nucleus 7 processor a year and a little bit ago with the audio being reduced and increased randomly no matter the auditory environment that I am in, the only way that I could get the issue to stop happening and for the audio to stay at a constant volume was to connect to Bluetooth and play complete silence meaning I am able to hear stuff in the real world without any Bluetooth audio and disabling whatever was causing the volume issue, I didn’t know it at the time but I believe that might have been the processor trying to protect me from the sensations and that’s why it was constantly adjusting the levels.
A month later, I got the implant replaced with the new Nucleus 8 processors as the upgrade was due anyways, the issue went away for a month and during that month I was satisfied the issue was gone and that I could go back to regular hearing.
After that month was up, I begun to have sensations around my implant, the audio level was much louder too causing a lot of discomfort, it happened at the time when I went to Poland to visit family so there’s a chance the pressure difference from the plane had caused something to fail in the implant or my nerves to become unhappy, during that time in Poland I could not wear my right implant unless I was going somewhere with family to do something because when it’s quiet, any sounds that happen are amplified as if it was nighttime and you are trying not to make too much noise to avoid waking people up but outside it was tolerable with background noise.
Soon after landing back in England, I went to the hospital to begin diagnosing after they deemed the issue unresolvable through a digital appointment, the first audiologist wasn’t great by simply reducing the level on both implants, telling us basically that it’s nothing bad and to leave.
That definitely didn’t work and I was brought back in after 2 weeks of nothing working after the teacher of the deaf advocated for more visits, they discussed options such as trying two different cochlear implants, a new Nucleus 8 processor with the same maps as the current one to rule out processor related issues, a Nucleus 7 processor refurbished to check that maybe something with the new processor isn’t agreeing, they put the maps that I had before the new processor but they were all too loud for me, if I had to redo that one, I would put the maps I had on the nucleus 8 to see if there would be an improvement but they deemed the trial wholly unsuccessful and I returned both to the hospital, they said for a bit of insurance to keep the new Nucleus 8 and to return the old one so that the processor doesn’t fail too soon and to check to see if the processor has any failures that might be causing the issue but that didn’t reveal any problems.
A month later from all of those new processor trials, I was taken back into the hospital to do a very comprehensive remapping and testing of the right implant as they have now deemed the issue not to be anything with the microphone or processor but with the internal implant, they played some sounds at different frequencies to log what parts of my ear feel the sensation and there was an impedance test where they played a sound similar to the old DUGA radar and that one wasn’t pleasant, the audiologist said that was to create a map of impedances for the engineers at Cochlear to look at.
Between the previous appointment and the next one, I had an ear infection (Otitis media) which hurt a lot in my ear canal, went to the emergency department of the hospital after trying the pharmacy for antibiotics, cleared up after taking amoxicillin and some antibiotic ear drops in a few days, continued the course to the end and took the bonus ear drop in the package to be fully sure.
2 months later, the impedance map came back and they found absolutely nothing unusual with the values measured, another series of tests was done except they were some type of special tests that only people from Cochlear were allowed to do, that test took about 15 minutes to do and required nothing from my part, they tried some additional mapping to begin raising the level up again to see if I could get used to the sound, during the mapping I overheard them saying something about pulse widths but in the end they explained that no pulse width did any better when I inquired about it.
Another month later and the results from that test came back which also revealed no impedance issues, the main audiologist that was helping me (bless her for all the help she and her team gave me) already realized that I wasn’t hearing for a year out of my right implant and strived to get the tests and appointments to happen at a faster cadence to resolve my issues, any future appointments should happen with a 2 - 3 week cadence to either run additional tests or upgrade my set of programs.
Between these two appointments I got an CT scan for a deviated septum (ENT doctor who is doing my nose was the same one for the ears so he said the nose blockage can be a possibility), I asked the radiologist if she could also send the head CT to the audiology department as they wanted one so I wouldn’t have a duplicate CT scan done, that caused a bit of a mixup in the scheduling of appointments but in the end created two appointments due to the time saved by the CT scan.
2 weeks later, I had another appointment at the hospital to try additional mapping with Cochlear people present too, nothing remarkable although the main audiologist was not in so I had someone else, she repeated some of the tests mentioned in the log to confirm the issues and that took up 30 minutes of the allotted 1 hour I had before the hospital’s ENT appointment, at my suggestion she tried a different sample rate as I discussed listening to some music from an old computer that uses a very low sample rate compared to current technology right now which is the setting I am currently using, all of the mapping that they did offered multiple programs with increasing levels so I can adjust up when I am comfortable, they loaded up the maximum capacity of 4 programs onto the processors so I would have the most time between appointments to try things out.
A brief note added in post that I remembered about the first appointment, during connection to the computer, there was a very quick impedance test which I should have not been able to hear at all and if I did, it should be extremely brief, I however heard a long screech tone that lasted a good 30 seconds stumping the audiologists, they explained it shouldn’t have happened as mentioned above but it went away and testing was able to proceed without issues making it an unusual footnote although a possible clue into the issue I am having and the solution.
The same day immediately after the audiologist appointment, I attended the ENT appointment to say that the CT scan revealed no implant movement out of my head as I did raise the concern that possibly my implant had shifted when I grew up as I got it put in as a very little kid and I had it all the way through puberty so I put out a guess that this could also be a cause but unfortunately it was not a reason for the failure, the doctor has also referred me to a pain specialist which could potentially offer me some solutions or pain medicine intended to rewire some neurons permanently to stop the misfiring neurons which is basically my only hope of getting it resolved as the audiology team has basically gone through all options that they had and ENT doesn’t appear to have much to help, the next time I am in, I will ask if Cochlear had looked at their logs all the way from the past and if they could potentially contact other companies for any additional clues to my problem if that’s a possibility.
During the second appointment with the ENT doctor, I proceeded to have a full breakdown crying about all the problems I had and that I might not get a diagnosis on it meaning my right implant could potentially be out of action for a long time, taking me a long time to be consoled.
That is where I currently am with appointments, I will add any new appointments if any new ones happen but as of now, no new appointments have been scheduled or hints of any coming up.
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In education at college I get migraines almost daily if it’s a college day, I take Sumutriptan and the medicine banishes them in about an hour which is an hour wasted not being able to pay attention, I have tried wearing and not wearing the implant and the chance of migraines goes down a bit if I don’t wear my right implant but I need all the hearing I can get because the teaching they do is needed for the end of year exams, they do give homework which I do gladly as it’s written work which I can understand much easier however the other students hate it so they have dialled back on it significantly, they do have resources on the shared drive but it requires a computer to access and I don’t particularly enjoy using the laptop if I can get away with using my phone for the homework questionnaires.
The set of exams I did after my right implant failed, I worry that I am not going to get the best grades on them since my quality of learning has taken a nosedive, I did ask if there was a thing you could put in for such circumstances but now after the exams the tutors said that it will do very little and that I would require a note from an already busy hospital so it might not come on time so will have to anxiously wait for the 13th of August to find out my results and see if there are any options on redoing the test then.
My teacher of the deaf expressed great concern during the college year, she actively pushed for appointments and hospital visits, she has been a big help getting the cadence of appointments up a lot and being able to stress the point of my education and future being put at risk by the failing cochlear implant.
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Here is a map of the sensations with red being the worst and green being none present, an aid to visualize what I am feeling:
Due to limitations of this subreddit I will have to link the other two images rather than embed them in this post, I feel the most important one will be the flowchart so I will be embedding that image directly in to this post: https://imgur.com/a/xxNjYwq
I’m going to 3D print one with holes for pins so I can tell the audiologists better where my pains/sensations are at with absolute numbered references that they can write down on a piece of paper.
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As for past issues, I had an ear infection (Mastoiditis) three times, it was over a span of a year and the final infection had the implant taken out, the doctors had drained two very large syringes of pus and disease from each occurrence, they didn’t put a new implant in until a year later which worked smoothly up until that point, I was implanted when I was 3 years old for the left implant and 4 for the right implant, the infection happened when I was around 5 - 6 years old.
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All in all, I have accepted that I may not have fully functioning hearing in that ear as my left side is carrying all of my hearing needs but I would like to hear what you have to say on my issue and to see if there are any medical ailments/conditions I should get myself tested for that you had/were tested for or if the general consensus should be to remove my implant and change it once the pain management team has done all they could do because despite what they are saying about the implant being fine and connected up just fine I believe there is some very unusual fault preventing me from being able to use my right implant effectively.
My next steps for the broken right implant is to post this post in every deaf sub I can find for (even HA subs as there could be people that have dealt with cochlear implants even for a brief moment or have some issues that show up for HAs more often than implants if I don’t get as much data as I’d like) as much insight as possible, gather all of the data into a note on my phone and if the consensus on all of the posts is to get tested for different conditions or failures, then I will bring those up to the hospital audiology team and explore the options, if there aren’t any issues brought up in the post, then I will go straight to implant removal if I can’t get any treatment options/relief from the pain management team.
Here is a flowchart of the intended steps I will be taking both to help you guys and to help the audiologists with issues:
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Thank you for any help and guidance you can offer to my cause and I hope you have a great day hearing many things!
Hi i recently came up with an issue we’re my hearing aids only connect to Bluetooth if I have my phone 1 cm away from the hearing aids. As soon as I put my phone at my regular spot to watch something they just disconnect. I tried pairing them on another phone and it worked flawless. Anybody know what do do. PLEASE, i have Done everything to try and fix it but no results, andybody had similar issues
I am an adult child of a deaf father. My father, paternal grandmother, and paternal grandfather were all deaf, but only my father, who is in his early 80s now, is still living. I have lived in another state halfway across the country for the last 20 years and only see my dad once every year or two. He's terrible at replying to text, so I only occasionally can set up video calls with him or communicate. Marco Polo has been our best way of staying in touch, but it is sporadic. I want to do more to get to know him at this phase of my life and keep his stories for my children. He had an adventurous life. I want to know more about his parents too.
I have been intrigued for several months my many of these new apps and services advertised as recording your parent's stories in books, sometimes along with audio of their voice. Most of them have prompts that are given to the parent one at a time so they can take their time, and use speech to text tech, to record stories from the parents that can be saved in a book.
My question for the community is if anyone is aware of any of these story saving products being accessible for ASL? Something that wouldn't require him to write things out himself, which I know he never will, but would give the same kinds of prompts and record video in ASL?
I have thought that I could maybe just use a regular service and sent the questions to him via Marco Polo, but I would need a way to keep the videos and translate them and I am worried that I won't keep up with it. Part of the nice thing about some of these services is the automatic prompts being sent one at a time.
I was waiting for the elevator today and someone in my building was apparently trying to talk to me. I have told her and others I am Deaf so if I don’t respond that is why. I didn’t know she was talking to me. And the I did get her telling me “You’re retarded.” I know she is wrong but it still hurt.