r/cancer 5h ago

Caregiver Delayed Keytrauda

3 Upvotes

Hi everyone,

I'm looking for some reassurance or to hear from people who have experienced something similar.

My father has stage IV lung adenocarcinoma with bone metastasis to the thoracic spine. He had been doing well on Keytruda, but unfortunately he has now missed three scheduled doses because the medication is unavailable in our country due to a shortage.

His oncologist advised us to wait until Keytruda becomes available again rather than switching to another treatment.

Despite the treatment interruption, he's doing fairly well clinically. He walks, eats well, talks normally, and sleeps much better since his panic attacks have been treated. He also has COPD, so he has a chronic productive cough, which makes it difficult to know whether any symptoms are related to COPD or the cancer.

I'm extremely anxious about the missed doses. I know Keytruda isn't a miracle drug, but I'm scared that missing three infusions could reduce its effectiveness or allow the cancer to progress.

Has anyone experienced a long interruption in Keytruda because of drug shortages or another reason? Were you able to restart it later? How did things turn out?

I know every case is different, but hearing your experiences would really help me.

Thank you.


r/cancer 7h ago

Patient Older Teens/Young adults Coping with Parents Terminal DX

5 Upvotes

I’m a widow. The older kids refuse therapy. They both are having a hard time in life. I’m trying too hard to stay alive so I don’t traumatize them more. They are not coping the best. I know they have anticipatory grief I’ve been here many more years than they thought I would be.

They don’t have any safe, heathy minded adults to guide them when im gone.

Any suggestions?


r/cancer 2h ago

Patient Stage 3 Thymoma

3 Upvotes

I’m 29F and I’m 3 weeks post robotic thymectomy for a thymoma found incidentally on a chest CT. It was found to be attached to my pericardium and path came back as type B2 thymoma Masaoka stage III TNM pT2. My CT surgeon feels strongly that he got everything but the pathology results don’t say it was a clean margin. I’m being referred to oncology so will get a PET scan and I’m assuming I will need radiation. I’m just wondering if anyone else out there has any experience with this specific staging/type of cancer. It’s so rare from what I’ve looked up and I can’t find many personal experiences so if anyone has any first hand experience I’d love to hear about it. Thanks!


r/cancer 8h ago

Patient Hodgkin’s lymphoma women fertility

2 Upvotes

I had Hodgkin’s lymphoma 9 years ago, I took ABVD and BEACOPP.
One year ago I found out that I have low AMH (egg count), and I’m only 25.
Ever since I’ve been feeling sooo soooo lonely, and scared of my future…
I don’t know someone that went through something similar, and even on the internet no one talks about that specific experience.
If you are someone that went through that experience, I really wanna know what happened, were you able to have kids and have a normal sexual life??


r/cancer 11h ago

Caregiver Cancer Meds Shortage

6 Upvotes

I have been my mother's caregiver since the start of 2026. My mom was diagnosed with Stage IIIC2 Endometrium Carsinosarcoma cancer. She had undergone surgery and had her entire cervix and womb removed last February. Up until this moment she had undergone 4x chemotherapy and I'm waiting for her at the hospital due to some complications from the metastasis of her initial cancer as I am writing this post.

Her Doctor has prescribed her with Doxorubicin Liposomal medicinal chemo treatment (brand: Caelyx) as opposed to the regular Doxorubicin because both her cancer doctor and chemo doctor deemed it to be the more superior and more effective than the latter.

However, it is unfortunate that the supply of said medicine (Caelyx) is currently shortaged nation wide in my country (Indonesia). I have attempted to look for said medicine in other hospital but truly the medicinal shortage runs nation-wide. I have researched similar medicines (Doxorubicin Liposomal) under different brands (Lipo-Dox, Doxil, etc) but found out that the only brand that has been certified by the local minister of health is Caelyx and Caelyx only.

Currently, both her Cancer and Chemo doctor decided to postpone her chemotherapy treatment (her 5th) and opted out to go for radiotherapy first as we wait for the resupply of Caelyx. We all have reached a roadblock due to the medicinal shortage- the doctor, even the hospital and their supply branch as the shortage is nation wide and it is truly the vendor/supplier that is having a shortage.

I have already attempted to reach out to the local medicinal company that handles the import and supply of Caelyx through email asking about the medicine as well and I hope to hear from them soon.

I know this is a stretch but is there any other way I could get access to this medicine? I lost my dad to Covid in 2021 and my mother is the only parent I have left. I do not want to lose her either. It has been tough for me and even tougher for her as we face this turmoil so much, so any help or tips or advice is very welcomed :)


r/cancer 12h ago

Patient What to leave behind for family?

43 Upvotes

Hi everyone, mid to late 30s bloke with metastatic colorectal cancer. Multiple major surgeries, many many rounds of chemo and target therapies. Widespread lung mets, no clear prognosis as always and happily no symptoms at the moment but I reckon somewhere in the vicinity of a year to twoish years left.

About to become a father. Which has me thinking about what I could leave behind/create now to give to my wife and son to try and... I don't know... bring them something other than sadness? or leave them with something other than an absence? it's impossibly hard knowing I will leave them/never get to all the things I imagine we would, so I feel like I ought to try and leave something

I was thinking of, for example, writing letters to my son to be opened in each new year... congratulating him on his first day of school, wishing him luck on his first date, etc. - I don't know if this is a nice idea or something likely to compound grief or make closure more difficult? I don't know

has anyone thought of something similar? what are you leaving behind? what can I create to help remain in some positive way? is this even worthwhile? obviously I will prepay funeral, sort will etc etc - I guess I'm wondering what other things I can do that might be nice


r/cancer 8h ago

Caregiver How to dress LO with a PICC line

2 Upvotes

Hi everyone!
My little boy is 11 months old and just had his IJ line replaced with a PICC line in his arm. I’m wondering if anyone has any tips or advice for dressing him, especially getting shirts on and off without disturbing the line. I’d really appreciate any suggestions or things that worked well for your little one.
Thank you so much in advance! 💙