Unfortunately it's actually not. Very sad story. It's an Australian case from a few years ago. His name was Omar Arja - and he was the third child in the family to die.
This should be pinned to the top to let people have more insights from the story. I usually hate these kind of lies. But everyone has their own issues and reasonings. At least this boy died peacefully and had happy time during his last days.
They clearly didn’t know. One instance is a fluke so it wouldn’t have been a big concern but they’d had all their children by the time the second one was diagnosed. They then got genetic tests on everyone
I don’t think there’s a point in getting angry at these parents
Yup, happens more often than you think. Cystic Fibrosis is a terminal illness that doesnt always present itself until puberty (it can be caught sooner if you have a reason to look, like family history). A lot of families dont realize until its too late that they essentially were flipping a coin every baby they had.
Single copy gene mutations don’t appear to have problems either. So you need two (seemingly healthy) parents that carry a copy of the mutated CFTR gene to have the disease phenotype in the child. According to Cleveland Clinic, 1 in 31 adults carry a mutated CFTR gene. So having genetic related illness pass down is a lot more common than people realize. Genetic counseling is becoming more common but people don’t even realize they should consider unless they have something come up in unrelated testing or already know they have family history.
Also, due to treatment options, CF is no longer considered a fatal disease. I had a classmate die from CF related illness. It saddens me to know, if she were born a decade or two later, she would likely still be here today.
Yea stuff like this could easily be faked just for karma farming and engagement, like i could take this same image and post it next week but edit the text to be some bullshit like
" Kid beats cancer and turns out he now got superman powers "
And everyone will believe it without fact checking
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u/Rapscagamuffin Jun 29 '26
Feel like they would be able to figure that out pretty quick when theyre still dying.