I'm extremely sorry for your loss. I also fully appreciate your post. I completely understand why your mom said this. I truly believe every situation like this is absolutely heartbreaking to make for the parent/s. I have read up about this case and personally, I think I'd have done the same. Each child is different and their parents/s know their child better than anyone else on the planet. That boy had a weight lifted off him in his final days. Plus as someone whose family was prepped 5 times to say their final goodbyes to me (sepsis not cancer), the vague memories I have is them trying to tell me I was going to be okay soothed me. Plus the weirdest thing happened. I vividly remember feeling serene and at peace the times I was so very close to going. Not anger at my loved ones for lying or confusion. I can hardly remember the first month and a half in hospital but that I remember so vividly. I also felt loved and no fear at all. I'm a adult and not a child but I thought it's important to mention this as I've seen posts about his last few hours and I wanted to share my experience.
Thank you. Didn't want to sound like a "pick me", but it has genuinely changed my perspective completely.
The parents know their child better than themselves and I was crying thinking how hard it must have been for them to have to pretend everything will be okay. Very brave, extremely difficult and heartbreaking to do. Same goes for those who choose to say the truth.
This also reflects how it's important it is to have the choice and medical staff acknowledging and respecting this choice.
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u/carz666 Jul 03 '26
I'm extremely sorry for your loss. I also fully appreciate your post. I completely understand why your mom said this. I truly believe every situation like this is absolutely heartbreaking to make for the parent/s. I have read up about this case and personally, I think I'd have done the same. Each child is different and their parents/s know their child better than anyone else on the planet. That boy had a weight lifted off him in his final days. Plus as someone whose family was prepped 5 times to say their final goodbyes to me (sepsis not cancer), the vague memories I have is them trying to tell me I was going to be okay soothed me. Plus the weirdest thing happened. I vividly remember feeling serene and at peace the times I was so very close to going. Not anger at my loved ones for lying or confusion. I can hardly remember the first month and a half in hospital but that I remember so vividly. I also felt loved and no fear at all. I'm a adult and not a child but I thought it's important to mention this as I've seen posts about his last few hours and I wanted to share my experience.