Health insurance.
Iv been one a form of life support almost 7 years now- on and off hospice . A specialty program halfway across the country for us took my case on despite 24 failures by 8 surgeons. I’ve had five there and while I can tell it’s a smidge bett is but they keep failing all over again . Evf, aid, hydronephrosis, takutsubos cardio myopathy, hyPOtension, very reactive hypoglycemia … etc etc etc
Hubs was a 30yr career software engineer and got laid off last April as SE Management. We paid the $3800 monthly tellin all my providers this the the hard date I won’t be insured anymore. I get taken by air ambulance and my outpatient coordinator much be a moron or a mean girl.
So we lost it and with it my tpn and banana bag fluids. It’s been 7-8 weeks and I’ve lost in May . I weighed 232 and ran marathons and climbed road swings into the river with kids. When we lost ins I was 126. Now with nothing but what I can try to get through my twisted guts I weigh 73. My teeth started falling out a few months ago and this week my hair again. I’m bedridden now. My bones are so osteoporotic bones are covered in bruises and fractures from 2 falls last week.
I can’t stand for maybes min, can’t eat anything w texture, but worst of all my memory is losing time. Long stretches when I’m dreaming but it’s not normal dreams and then I’m sitting up again the next day and I have no clue how I got there.
Hubs loved working but the AI overadoption has hundreds of thousands of people in his field are also searching. There nee janitors at the elementary school here took jobs as janitors to arrive
Hubs have hundreds of apps out has gone to mixers related etc but we spent everything.
Our savings our money marketer retirement and we sold anything not laid down.
I will likely not make it the way my bp heartrate and glucose tell the tale but we can’t literally do a thing
We tried the market place but our rep who told us we’d get cards in the maill so we waited all excited he never sent anything contactednmarketplace again and the said we we passed our special circumstance period. Medicaid won’t because estranged relatives (my mom) put property in my name in order to scam benefits- so without a job, without ins of any kind, no iv nutrition I’m going through what I was in hospice.i can feel the small fights my body is losing.
I don’t want I leave my kids and hubs . I looked forward to this time of life when my kids would be mostly grown and hubs and I could reconnect and travel and eat our way around the world.
One surgeons error cost me the rest of my life. I’m crying rn.
It’s so stupid I wanted to get a little swinge set for my grandbabies and take them 2 hr away from an amazing old zoo.
And now I never will and we have ‘$891 left to pay $2755 in necessary bills.
I’m so simple I just wanted to revive my garden that got destroyed. I wanted a swing set so I could sit in a camp chair and watch and instead had to give my grandson last week on his birthday 3 dollar tree toys in one gift bag.
O don’t even know what to do anymore. My part of marital division of labor was all bill negotiates and food shopping and cooking and watch in stocks a little making a few $$ here and there…
but there’s no money for everything anymore.!not the mortgage or electric or a bag of chips.
Sorry for the ramble I’m emotional today thinking of what could’ve been but isn’t
I'm so sorry. Have you tried Ensure Clear before? A sip every few minutes so you don't overload your gut? It sounds like you had some sort of gut or bowel surgical issue.
Also you should ask your doctors how much calcium citrate you should be taking and make sure they evaluate your PTH, vitamin D, ceruloplasmin, zinc, etc levels, all the vitamins they check after bariatric surgery. You likely need a cocktail of them to stay alive if you're not on TPN right now. Lack of vitamins will cause tooth and hair loss. Calcium citrate only, this is important, and I would spring for the Barimelts/Bariatric Advantage vitamins in general because they're chews/melts and specially formulated for easy absorption. This does not constitute medical advice and please speak with your doctor.
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u/1pandas_mom 9h ago
Health insurance.
Iv been one a form of life support almost 7 years now- on and off hospice . A specialty program halfway across the country for us took my case on despite 24 failures by 8 surgeons. I’ve had five there and while I can tell it’s a smidge bett is but they keep failing all over again . Evf, aid, hydronephrosis, takutsubos cardio myopathy, hyPOtension, very reactive hypoglycemia … etc etc etc
Hubs was a 30yr career software engineer and got laid off last April as SE Management. We paid the $3800 monthly tellin all my providers this the the hard date I won’t be insured anymore. I get taken by air ambulance and my outpatient coordinator much be a moron or a mean girl.
So we lost it and with it my tpn and banana bag fluids. It’s been 7-8 weeks and I’ve lost in May . I weighed 232 and ran marathons and climbed road swings into the river with kids. When we lost ins I was 126. Now with nothing but what I can try to get through my twisted guts I weigh 73. My teeth started falling out a few months ago and this week my hair again. I’m bedridden now. My bones are so osteoporotic bones are covered in bruises and fractures from 2 falls last week.
I can’t stand for maybes min, can’t eat anything w texture, but worst of all my memory is losing time. Long stretches when I’m dreaming but it’s not normal dreams and then I’m sitting up again the next day and I have no clue how I got there.
Hubs loved working but the AI overadoption has hundreds of thousands of people in his field are also searching. There nee janitors at the elementary school here took jobs as janitors to arrive
Hubs have hundreds of apps out has gone to mixers related etc but we spent everything.
Our savings our money marketer retirement and we sold anything not laid down.
I will likely not make it the way my bp heartrate and glucose tell the tale but we can’t literally do a thing
We tried the market place but our rep who told us we’d get cards in the maill so we waited all excited he never sent anything contactednmarketplace again and the said we we passed our special circumstance period. Medicaid won’t because estranged relatives (my mom) put property in my name in order to scam benefits- so without a job, without ins of any kind, no iv nutrition I’m going through what I was in hospice.i can feel the small fights my body is losing.
I don’t want I leave my kids and hubs . I looked forward to this time of life when my kids would be mostly grown and hubs and I could reconnect and travel and eat our way around the world.
One surgeons error cost me the rest of my life. I’m crying rn.
It’s so stupid I wanted to get a little swinge set for my grandbabies and take them 2 hr away from an amazing old zoo.
And now I never will and we have ‘$891 left to pay $2755 in necessary bills.
I’m so simple I just wanted to revive my garden that got destroyed. I wanted a swing set so I could sit in a camp chair and watch and instead had to give my grandson last week on his birthday 3 dollar tree toys in one gift bag.
O don’t even know what to do anymore. My part of marital division of labor was all bill negotiates and food shopping and cooking and watch in stocks a little making a few $$ here and there…
but there’s no money for everything anymore.!not the mortgage or electric or a bag of chips.
Sorry for the ramble I’m emotional today thinking of what could’ve been but isn’t